Julie was born with Pierre Robin sequence, but thanks to consistent care at CHLA’s Steven & Alexandra Cohen Foundation Newborn and Infant Critical Care Unit, she has defied expected limitations and enjoys many hobbies.
Within days of being born, Julie Rose was diagnosed with Pierre Robin sequence, a rare congenital birth defect that can affect everyday function, such as breathing, hearing, feeding, and sleeping.
On her second night of life, Julie Rose was transferred to Children’s Hospital Los Angeles (CHLA) and admitted to Steven & Alexandra Cohen Foundation Newborn and Infant Critical Care Unit. There, Julie Rose’s parents were told she might not crawl or walk — but that has not been the case. Now eight years old, Julie Rose has some physical limitations, but her mom says she “does everything in her own time and her own way to make it work.” Julie Rose is a Girl Scout and enjoys many hobbies.
